|Big brother Tristan reading to little brother Elliot the newest issue of Highlights on a Saturday Morning.|
Who needs cartoons?!?!
Thanks to all of you who issued such lovely words of encouragement & prayer for me and our son Tristan.
We had a good day together down at Children's Hospital.
We are going back in one month for more tests & checkups.
Sadly Tristan will be losing a permanant tooth which he just got in....we are not sure if it's due to the Schleroderma or not....but we are hoping it's a fluke and this will not repeat itself....however, we are preparing ourselves for the fact that it could.
All the dentists/oral surgeons are stumped as to what has happened; they've never seen this before.
Linear Schleroderma is VERY rare....and especially where Tristan has it
(on his jawline/chin)
So, there is not much to go on for "history" in this case.
We will continue to do the low dose Chemo and see where this disease will take us.
I just wanted to let you all know that I appreciate you so much.....and that it's so nice to be able to be
|Blowing bubbles earlier this Spring 2011|
I am once again, so thankful for your prayers....and covet more if you will.
As I said before, we just don't know much about this disease as it's so rare, and never know
if/when/where it could strike his body again.
Thanks again ladies....You are appreciated
MORE THAN YOU KNOW.